I never got their names. It's enough that they inspired this blog. |
This past weekend, I sat opposite three people who were
waiting to be picked up after a conference on disability and rehabilitation.
They were all blind, some with a double handicap. The small guy in a wheelchair
– yeah, that one with a blind cane towering above him – had just won a major
award at the closing ceremony. Everyone passing by was congratulating him. I sat
across the table from him and sunk into my observer-mode comfort zone. I went
click-click with my phone camera, missing all the moments when they flooded the
space with laughter.
This winner-guy’s joie-de-vivre was a thing of an alien wonder.
The wheelchair swallowed his tiny frame, his lifeless legs dissolved into the folds
of his pants, his eyes a decorative reminder of what light once flooded therein.
But as he spoke, his personality towered above all that brokenness. His storytelling
voice boomed. His laughter leaped in gales that rushed to the shore and
retreated with the debris of my hidden shards.
I watched as he raised his right hand every so often in a
confident preparedness for a congratulatory handshake from well-wishers. Some,
passing by quickly, didn’t notice the outstretched hand. They were mostly
conference staff clearing up the venue, their sighted eyes and moving limbs
carrying them on autopilot towards a forgettable destination. Winner-guy took
no offense as he withdrew his unshaken hand time and again. His stage presence
rose undiminished.
As I listened, I realized that he rose not only because it
was his moment, it was who he was. Somewhere in the stretch of his young life, he
had mastered the art of conquering brokenness. Now he was cracking a joke, about
the phone call he had just made to a friend:
“Yeah, so I bragged about getting the big award and he asks
me, for real? I say, yeah, for real! He said, ya’ right! Did anyone see you get
the award? I said, no.” Without missing a beat, the three laughed out so loud I
found myself laughing along.
“Have you always been on a wheelchair?” The lady asks
Winner-guy.
“Pretty much. Since I was four months old. Then when I was
23 I had a brain swelling that led to my blindness. I used to drive, do everything
normal.” I wondered what “normal” meant for someone who had been
wheelchair-bound all his life.
“Oh, my. It must be difficult for you now,” said the lady.
“Well, I was taught never to indulge in self-pity. I use my
disability as a reason to achieve.” He went on to tell of things he’s achieved,
including an interest in pastoral work. This solicited an interesting response.
“Churches can make you feel very guilty sometimes,” said the
lady. I perked up my ears harder and waited for the rest of her thoughts. “They
tell you it’s God’s will that you’re blind, or that it’s the devil’s work. It
all leaves you feeling guilty that you’re being punished for something.” It’s
at this point that I struggled to fight back my tears.
Her words had penetrated a well-guarded and mostly forgotten
fortress of anger within me, and I wanted to cry it out. I have a loved one
who’s been blind 35 years. Across my mind flashed images of desperate supplication
at the altar of miracle peddlers who told her that she’s not getting healed
because she lacks enough faith; anointing oils poured on her head to chase
demons of blindness she had apparently invited; whispers of being an inheritor
of curses for bizarre sins committed by some unknown relative in lifetimes past;
multiple hands of barking prayer
wolves shaking her head violently through hours of tortured ritual,
causing her to spend the night with a splitting headache.
I could sue them, I could sue them all, I could sue them all
to blistering hell. They took her brokenness for a playground to test out their
power, their beliefs, their unquestioned trade. This lady understood. But
unlike me, she laughed about it. She stood triumphantly above the cracks where religion
had caused her inner brokenness. I had sunk defeated through those cracks and
therein hid my anger. The tears welled up at the plunge-pool of my eyes with a
fermented burning. I released them with a blink. I was now free to laugh about
it all.
The suit guy is a listener. He doesn’t say much. He listens
with his whole body, his head tucked deep into his chest, moving to stand very
close to whoever is talking. He has no concept of personal space. That’s an
invention of sighted folk in civilizations that have decided that the energy field
of another human being causes discomfort.
Standing too close to a stranger is an infringement of an unspoken right, mostly perceived as foul and primitive. In the villages blind to individualism, the six inches of personal space is a non-existent concept.
I find myself wanting my space too. Yet I
wonder, have we diminished our humanity in the course of building walls to
protect individual comforts? I watch Suit guy as he inches his whole self right
up to the lady’s knees when she starts talking, just to stand and listen. I've seen this with a lot of blind people; this listening with your entire being. I’m filled with the warm wonder
of rediscovered innocence. I know he’s not hard of hearing, because another
lady, perhaps his wife, calls out softly from the doorway and he turns around,
tap-tapping purposefully towards a known destination.
We live in a world where able-bodied people scratch at the
scabies of their smallness for reasons to explain their purposelessness, their lack of accomplishment. Brokenness
that can be overcome with choices and attitude adjustment is often qualified as
“disease” that places one on the line for benefits and entitlements. There’s
always someone or something else to blame, never a mea culpa. The art of petulant
high-nosed victimhood is wearisome and detestable. I was getting an attitude
re-adjustment myself just listening to these three.
But it’s when Winner-guy mentioned his wife, casually and
endearingly, that I caught the stench of my own assumed superiority as a limbed
and sighted being. How conceited of me to have been surprised that someone has
loved him into spousehood, completely, publicly, without shame. Life’s most
awesome experience, the experience of another’s unconditional embrace, is best savored
when we do not hide our brokenness in shame or lay it out as a trap to catch another’s pity. Winner-guy seemed unpretentiously happy, content, alive. He was someone’s knight
in shining armor.
sere
2 comments:
whispers of being an inheritor of curses for bizarre sins committed by some unknown relative in lifetimes past;' this quote is very famous in our clan. Those afflicted with any 'misfortune' it is attributed similarly to some relative in the past whose spirit is still suspended in between our world and the ancestors world, and hence choses to inhabit the 'unfortunate' one ensuring no 'joy' is experienced on earth, until we meet your characters who have come to positive terms the way they are. Reminds me of The Concubine http://mqunulungu.blogspot.com/2013/03/summary-of-concubine-by-elechi-amadi.html
Of all the African concepts on the moral nature of the universe, I rather enjoy Yoruba's view of the disabled as beings in-between worlds; half-formed thanks to Obatala who molded them while drunk on palm wine! At least one is not looking for an ancient relative to blame, and the deity who fudged up a DNA strand and caused a defect is not explained as perfect. He loves his creation but just got drunk on the job a few times.
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